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SOURCE: Epilepsy Foundation of Greater Los Angeles
Statewide Awareness Bus Tour Visits Sacramento to Recognize Senator for His Leadership in Protecting the Rights of Students with Epilepsy
Sacramento, CA (PRWEB) December 05, 2012
The “Love Your Brain Now” Bus Tour traveled to Sacramento to park a 20’ x 15’ interactive, inflatable "Big Brain" near the South Steps of the State Capitol on Monday, December 3rd, as part of a pop-up exhibit delivering messages about the importance of protecting and caring for the brain.
With the “Big Brain” as the backdrop, Epilepsy California presented Senate Republican Leader Bob Huff (R-Diamond Bar) with an award to honor his role as author of Senate Bill 161 and acknowledge his courage in protecting our most vulnerable children with epilepsy. Despite heavy opposition, SB 161 passed to authorize trained, unlicensed personnel to administer a life-saving emergency seizure rescue medication to students with epilepsy in California schools.
"I am deeply honored to receive recognition from such an admirable organization as the Epilepsy Foundation of Greater Los Angeles and their statewide advocacy network, Epilepsy California," said Senator Huff. "Working with Epilepsy California to protect students in public schools really was a labor of love."
Joining in the awards ceremony were epilepsy advocates, families and representatives from Epilepsy California, Epilepsy Foundation of Greater Los Angeles and Epilepsy Foundation of San Diego County. Advocates spent the day greeting new legislators to deliver information about epilepsy, personally thanking Senators and Assemblymembers for voting in support of SB 161 and also welcoming legislative staff and members of the public to the brain exhibit.
"The passage of the bill represented major progress for our children and we thank Senator Huff for his leadership." said Neva Hirschkorn, a parent advocate with Epilepsy California.
The “Love Your Brain Now” Bus Tour launched in Los Angeles on October 28, 2012 and has since traveled throughout California to educate students and the public-at-large about ways to prevent brain trauma and seizures, while sharing ways for those with epilepsy to reduce seizures, and for everyone to learn seizure first aid.
"The Sacramento Tour stop was also a wonderful opportunity for Epilepsy California advocates to visit new and returning legislators and distribute information about epilepsy and Epilepsy California, and to meet with representatives of the California School Nurses Organization so that together we can ensure consistent and quality implementation of the bill statewide." said Ann Kinkor, statewide advocacy coordinator for Epilepsy California.
To learn more about the Tour, please visit http://www.LoveYourBrainNow.org.
Without warning, seizures can happen to anyone at any age. When a person has two or more unprovoked seizures, they have epilepsy. Seizures do not all look the same and, according to the International League Against Epilepsy, there are currently more than 25 different recognized epilepsy syndromes affecting almost 3 million people in the U.S. and about 65 million people worldwide. Someone is diagnosed with epilepsy every four minutes and, this year alone, almost 200,000 people in our country will be diagnosed. To date, there are no known cures.
ABOUT EPILEPSY CALIFORNIA
Epilepsy California is the recognized, unified voice of people with epilepsy throughout California, and its members currently consist of the Epilepsy Foundations of San Diego County and the Epilepsy Foundation of Greater Los Angeles. We are pro-active in developing a statewide epilepsy agenda, and advocate within state government and state agencies for public policy which ensures the rights of people affected by epilepsy to fully participate as contributing members of their communities. Epilepsy California represents about 300,000 families affected by epilepsy in California. Visit http://www.EpilepsyCalifornia.org for more information.
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